What is EE?

So a few months ago I found out that Aaron was diagnosed with Eosinophilic Esophagitis (EE).

Eosinophilic Esophagitis (EE or EoE) is an emerging disease that is increasingly being recognized among pediatricians, internists, allergist, gastroenterologists (GI specialists), and other physicians. It is a condition that affects the esophagus and has been rising in incidence over the past decade. The main EE symptoms may mimic gastroesophageal reflux disease (GERD) and can vary depending on the age of the child.

When Aaron was around 9 months he would vomit excessively. Initially my pediatrician suggest that he had really bad reflux but after several attempts to correct the reflux there was no solution. My poor baby was throwing up left & right :-( I felt so helpless! After several attempts and no success I decided it was time for a change so we switched pediatricians and off the bat they recommended that we visit a Allergist to seek help. After a few trips to the Allergist they realized that Aaron had severe food allergies to Milk, Eggs, Fish, and Peanuts. Once these foods were eliminated from his diet the vomiting decreased however it was still happened daily which was GREAT compared to 3-5x per day.

At around 18 months our pediatrician recommended that we visit a gastroenterologists (GI Specialist) to assist with Aaron's vomiting, although it was not as often it was still a problem. After a visit to the GI Specialist they informed us that Aaron had poor weight gain, the term they used was failure to thrive. After hearing this I was devastated...my lil boy was so happy but so sick at the same time! I was a big mess, I knew something wasn't right but he had always been on the smaller side and he had an increased appetite but I guess it didn't really matter if he was vomiting daily. Our GI Specialists decided the best thing to do was to go to the root of the problem, so she scheduled an endoscopy for Aaron so that she could take a closer look at his stomach and esophagus. Once we got the results back from the endoscopy it was apparent that Aaron had severe reflux but that there were also a lot of white blood cells present in his esophagus. So she treated the reflux with a high dose of Prevacid which in results helped 100% with the vomiting and suggested we come back for a follow up endoscopy to see if any further problems exist.

After 3 months on the Prevacid (with great progress) we went in for our follow up endoscopy. This is when our GI Specialist informed us that Aaron has EE, the doctor informed me that EE was a fairly new disease that’s becoming more common amongst children. She informed me that children with food allergies are more likely to develop EE. In future posts I will discuss what actions we are currently taking to decrease the symptoms of Aaron's EE.

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